This Light, Momentary Affliction: Suffering and Faith

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Location: Jervis Bay // Canon EOS 600D

In a world where suffering is an acute reality, where people struggle daily with pain, abuse and trauma, how is it possible to maintain faith? Last week I shared an article –  The Reality of Living with an Invisible Illness – seeking to honestly explore the battles people with chronic physical and mental illnesses face. Here though, I want to articulate how it is possible to have faith in the midst of chronic illness, in the loss of a loved one, in the shock of a cancer diagnosis, in the hunger of famine, in the chaos of a natural disaster. Suffering and faith are not mutually exclusive; I would argue, from my experience and the testimonies of numerous friends, that faith is essential for surviving suffering.

Whether you know God, are searching for truth or believe God can’t possibly exist, please know that I’ve wrestled with these truths for almost a decade, reading widely in the hope of finding answers to my own suffering. I’ve battled with doubt, and by no means walked in ‘blind faith’; my faith and hope have been hard won. I’ve questioned and looked for truth in other worldviews and religions, but nowhere have I found a solution to suffering, a promise in suffering and a purpose for suffering that even come close to explaining my personal experience and what I see in the world like the Bible does. I write this with certainty, and I hope that whatever your background or present circumstance, you can read this with an open mind.

The problem and solution to suffering

Many people think that the God of the Bible (if he even exists) is an impersonal being who has the power to end suffering but doesn’t. However, the biblical narrative does not ignore or minimise suffering; it unapologetically addresses the cruel reality of our world, in which suffering is an unavoidable problem, inherent to life on this earth. It explains suffering’s origin: human sin and the resulting brokenness of our world; and it provides the solution: Jesus Christ. In Jesus, God became fully human – facing all the pain and temptation we face daily, in total obedience to God. He chose to enter into our weakness, so that He could minister to our brokenness. Jesus was mocked, whipped, crowned with thorns and ultimately crucified on a Roman cross – taking all our sin upon Himself and experiencing the agony of our separation from God. He rose to life, conquering death and bringing, through His resurrection, the hope of a new creation. He did this all for us – so that we could have life and the hope of ultimately being freed from our sin and the pain and suffering of this world.

John Stott once wrote: ‘I could never myself believe in God if it were not for the cross. In the real world of pain, how could one worship a God who was immune to it?’1 No other worldview or religion provides a solution to suffering that involves a loving, relational God humbling Himself by becoming human to suffer on our behalf. In this, the God of the Bible is unique, and He is a God we can relate to personally. He understands our pain, and He does something about it. In the midst of suffering, our world questions how a good God can allow it to continue – while refusing to acknowledge that He’s already worked, through Jesus, to bring it to an end. Revelation 21:4 says: ‘…and He will wipe away every tear from their eyes; and there will no longer be any death; there will no longer be any mourning, or crying, or pain; the first things have passed away.’ God has promised a new creation free from suffering and sin, and though our present pain is very real, we can look forward to the day when it will be a distant echo of reality.

The promise in suffering

The God of the Bible does not promise a suffering free life to those who believe in Him; in fact, He promises the opposite! We will suffer in this life; this is inevitable. John 16:33 recounts some of Jesus last words to his disciples – the men who walked alongside Him as He did his ministry on earth, the men who watched Him suffer and die on the cross, only to come back to life and appear to them. Jesus said: “I have told you these things, so that in me you may have peace. But take heart! I have overcome the world.” Jesus promised his disciples that they would suffer, and they did. Yet they had courage even as they faced death for preaching the gospel, knowing that Jesus had overcome death for their sake. We too have this promise, and can take heart in the midst of our own suffering!

God does not leave us to suffer alone; the Psalms speak to God being present with us in our suffering. Psalm 23 says: ‘The Lord is my Shepherd, I shall not want…Even though I walk through the valley of the shadow of death, I will fear no evil, for you are with me; your rod and your staff, they comfort me.’ The Psalmist recognises that God provides for us in the midst of our suffering, that He walks beside us as we face death and pain and trauma, that He guides us and comforts us in our suffering. In my previous article I explored how chronic illness can be isolating, as the sufferer faces stigma and the assumptions of misguided people. The Bible reveals a God who does not leave us to suffer alone in our illness, but provides us with His word: pages filled with accounts of people who suffered in numerous ways, yet trusted in God not just to deliver them, but also to equip them to endure their suffering. This faithful God promises that no suffering – no matter how great – can separate us from His love

The apostle Paul recounts the suffering he experienced as he shared the gospel: imprisonment, beatings, shipwrecks, hunger, thirst and all kinds of danger (see 2 Cor 11:23-30). He later says that though he pleaded with God to take away his suffering, God didn’t – rather, ‘He said to me, “My grace is sufficient for you, for my power is made perfect in weakness”. And how does Paul respond? ‘Therefore I will boast all the more gladly in my weaknesses, so that the power of Christ may rest upon me. For the sake of Christ, then, I am content with weaknesses, insults, hardships, persecutions and calamities. For when I am weak, then I am strong” (2 Cor 12:9-10). In our weakness, like Paul we can learn to rely on God more – to recognise how much we need Him. When our bodies are weak, overwhelmed by pain and fatigue, we can look to God for strength, knowing that His grace is sufficient. When our minds are in chaos and anxiety leaves us reeling, we can pray, knowing that God not only hears our prayers but is already working for His glory in our lives.

The purpose of suffering

As well as God providing a solution to our suffering in Jesus and the sufficiency of His grace in our weakness, the Bible is clear that our suffering has purpose: both in this life and the next. 2 Corinthians 1:3-4 explains that God comforts us in our affliction so that “we may be able to comfort those who are in any affliction, with the comfort with which we ourselves are comforted by God.” I’ve seen this in my own life through the love of my family and the friendships I’ve been blessed to form with others who suffer from similar chronic illnesses. As I shared in my previous article, our experiences of suffering enable us to empathise with others who struggle; we can learn to live outwardly and comfort others even in the midst of our own pain. In a world that has no answers for those who suffer in isolation, God provides – both in Himself, and in the blessing of community with fellow sufferers.

Furthermore, God works in us in the midst of our suffering. In 2 Corinthians 4:16-17, Paul writes, ‘So we do not lose heart. Though our outer self is wasting away, our inner self is being renewed day by day. For this light momentary affliction is preparing for us an eternal weight of glory beyond all comparison.’ When we suffer, as our bodies decay with age or sickness and our minds weaken, God is working to strengthen our character through perseverance, to prove our faith genuine, uniting us with Jesus. There is not only hope that our suffering has purpose now, but also a hope that our suffering has purpose beyond this world. Seeing our present suffering in light of eternity changes our perspective. The temporary suffering we experience in this life, however painful and frustrating and unfair it may be, is what God uses to prepare us for the eternal glory that awaits those who hope in Him.

Resources:

Here is a (by no means exhaustive) list of books I’ve read that articulate – with greater clarity and depth than I am capable – the truths I’ve sketched above. I’ve ordered them from most academic to most accessible.

How Long O Lord?: Reflections on Suffering and Evil by D. A. Carson

Making Sense of God: An Invitation to the Skeptical by Timothy Keller

Suffering and the Sovereignty of God edited by John Piper and Justin Taylor

Is God to Blame: Moving Beyond Pat Answers to the Problem of Suffering by Gregory Boyd

Where is God When It Hurts by Phillip Yancey

Glorious Ruin: How Suffering Sets You Free by Tullian Tchividjian

Suffering Well: The Predictable Surprise of Christian Suffering by Paul Grimmond

If I Were God I’d End All The Pain by John Dickson


My story: If I’m Honest: Life With Chronic Fatigue

1 Quoted in: The Reason for God by Timothy Keller, p195.

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The Reality of Living with an Invisible Illness

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Location: Sublime Point, Wollongong // iPhone 6.

Living with a chronic physical or mental illness can be a very isolating experience. Often these illnesses develop unexpectedly and the shock of going from healthy to unwell overnight feels like whiplash. The sufferer is left reeling, needing to readjust to a body and mind that does not work the way it used to. There is resulting grief over a life that feels limited in comparison to before. Most chronic physical and mental illnesses are ‘invisible’ – there are no instantly recognisable symptoms or signs of sickness. Many suffer in silence, faced with stigma and prejudice in a world that idolises health.

I’ve lived with chronic fatigue/pain and depression/anxiety for the last 9 years – you can read my story here. Now I’m seeking to give a voice to those who bravely persevere through illness every day, in the hope that the stigma surrounding chronic physical and mental illnesses (which I will refer to as ‘invisible illnesses’) may be lifted. The words I share are inspired by friends and strangers I’ve surveyed; I’m infinitely thankful for their courage and honesty.

…on guilt and expectations

Life is unpredictable when you live with an invisible illness. Every day you wake up not knowing how you will find the energy to cope with the small things, let alone the big things, when your body and mind are fighting against you. Choosing to go out one day often means sacrificing the next day (or three!) to rest, because you deplete a greater percentage of your energy and it takes twice as long to recover. It’s frustrating to watch people your own age do things you desire to do, but that you are physically incapable of. You worry people will think you’re lazy, when often people with invisible illnesses are actually the most driven – you have to be motivated to persevere through your illness!

The unpredictable nature of an invisible illness means that you often make plans, only to have to cancel them at the last minute. You feel guilty for not being able to push through and live up to people’s expectations, even though you cannot control your body or mind. You fear people will conclude that you’re unreliable and will stop asking to spend time with you, increasing your isolation. Every time you make plans, there is an internal battle between knowing that seeing people may make you feel better, but will cost you physically and mentally.

… on limitation and learning

Invisible illnesses can be incredibly limiting, requiring huge lifestyle change and a need to manage every detail of life. There is a sense of acute loss that accompanies this life adjustment. People with invisible illnesses are often restricted in the amount of work – both cognitive and physical – that they can do daily. Working and studying can so greatly deplete your mental and physical energy resources that there is little left over for interacting socially, impacting relationships with family and friends. You need to pace your activity and plan ahead in order to ‘budget’ your limited energy. Your decreased capacity may limit your involvement in extra-curricular activities like sporting groups and ministries. Management of invisible illnesses can sometimes also require dramatic changes in diet, which brings its own stigma and social isolation.

While being limiting, there are also many positives that come from having an invisible illness. People who face daily pain, fatigue and/or depression learn to empathise with others who suffer. Suffering is a universal aspect of human life, and when you suffer, it enables you to become more tolerant and accepting of those who also face adversity. There is a sensitivity and compassion that is unique to those who understand hardship. When you are restricted in what you can do on a daily basis, you become more aware of what is important in life, and learn to truly value the people around you. The stigma surrounding invisible illnesses teaches you to be more discerning and slower to make assumptions about people. Though illness can be very isolating, it also provides opportunities to form unlikely friendships with people who share similar experiences.

Living with an invisible illness also teaches you the importance of self-care. You become more aware of how your body and mind work, and learn to establish and maintain boundaries to protect you from pushing yourself beyond your limits. Having an illness enables you to adopt a slower lifestyle – to value rest and make space in life for reflection, meditation and prayer. You learn to be patient with yourself and others – to see weakness as an opportunity for growth. To cope with the mental and physical strain of illness, you learn strategies that empower you to be more intentional in everyday life.

…on fighting fear

Most people with invisible illnesses fear the impact that their illness has on the people they love. You worry that you will lose contact with friends and family; there is no greater fear than being alone. You fear that friends and family won’t understand how much your illness is beyond your control – how desperately you want to just be ‘normal’ again. You fear that new people you meet won’t see the real you, because initiating conversation and articulating what you think and feel is exhausting. Those who are single worry about finding someone who will accept them and see beyond their illness. Those who are married fear how their illness burdens their spouse and how it may impact their children.

Many fear how their illness will control their lifestyle, and limit them from living a fulfilling life. Often, the prognosis for physical and mental illness is either unknown or lifelong, so it impacts your whole life – not just a few days of your life like the average illness or stress episode. You fear how your illness will effect your independence and ability to achieve your life goals. You fear missing out on opportunities and experiences that others your age have. Many people with invisible illnesses worry about how the illness will affect them long term and fear relapsing or getting worse with age.

… on impacting others

Invisible illnesses don’t just impact those who suffer from them, but also those who do life alongside them. Family and friends often sacrifice time and energy into looking after you. Your illness can limit how often you are able to go out or where you are able to travel. You are grateful for the way your family and friends try to understand and accept you, illness and all, but feel guilt that you are hindering their enjoyment of life. Having an invisible illness can be eye-opening for those who are close to you, as your capacity decreases and you depend on them in ways you previously didn’t need to. You may have been the solid-rock, the dependable one, the one who always gave their time and energy into looking after others, but now you have to rely on others more. This involves learning that it’s OK – and actually loving – to allow someone else to love and care for you when you need it.

…on identity and empathy

When you have an invisible illness, it often feels like the illness defines you and controls your life. Changing your mindset and recognising that you aren’t defined by your illness is hard, but ultimately freeing. Your illness is part of your life, but it does not change who you are and the value you contribute to your relationships. Knowing who you are and being secure in your identity apart from your illness radically changes how you approach life. You can be grateful for what your body and mind can do, even though your illness may impact your physical and mental functioning. Know that your life has purpose that can be fulfilled even when you are weak – don’t judge yourself based on your own or others’ flawed expectations of who you should be.

Having a strong support system around you is so important for living with an invisible illness. It can be hard to maintain a wide social sphere, but finding a small, understanding group of friends to confide and invest in outside of your immediate family is vital. Connect with other people who share similar experiences with illness – you are in a uniquely valuable position to empathise with others who suffer. Having people in your life who truly understand makes living with illness less isolating. Seek help, and don’t be afraid to admit that you need support.  Use what you’re going through to reach out to others who suffer and to educate people on the nature of invisible illnesses.

…on caring and listening

For those who support a person with an invisible illness – the best thing you can do is to listen. People with invisible illnesses often get bombarded with (usually) well-intended ‘advice’ about how they should care for themselves and where they should seek treatment. However, for most of us, we’ve heard it all before – usually from the medical professionals who oversee our treatment. We know what we can do to get better and we’re already doing everything we can to be as well as we can be.

In relating to someone with an invisible illness, your ears are your biggest asset. Sometimes we just won’t want to talk about it, and that’s OK.  Recognise that until you have experienced a chronic illness yourself, it’s impossible to understand what people go through. Platitudes aren’t helpful, and for many, illnesses don’t just “get better” with time. People sometimes fear saying the wrong thing, so they avoid the subject of illness altogether – which can often be more hurtful than saying something insensitive. Being willing to sit for extended periods of time with open ears, ready to accept and not judge, can be the best way of supporting us.

The most powerful thing for a person suffering from illness is that you show you’re willing to be there to help them in whatever way they need. Saying you will be there for someone means walking alongside them for the long haul – however many months or years they will be affected by illness. Supporting someone with an invisible illness means being prepared to initiate communication and perhaps carry a greater load emotionally and practically. Learning what a person’s physical and mental boundaries are is so important. Believe us when we say we can’t do something and recognise we feel grief at having to say no. Be patient with us, and realise we don’t want to be sick any more than you would want to be!

Everyone’s life is unique, and not everything shared will be universally experienced. In writing this article I’ve sought to paint a vignette of what life can be like for the invisible illness sufferer, both from my own experience and the stories and survey responses I’ve collected. For those who read this who suffer from an invisible illness, I hope that you feel less alone and empowered knowing you have value and can live a fulfilling life, despite your limitations. For those who read this who know and support someone with an invisible illness, I hope you’ve gained some insight into their world, and how you can better care for them. Let’s keep fighting to break the stigma surrounding invisible illnesses!

Resources for people with invisible illnesses:

https://themighty.com/

http://www.invisibleillnessweek.com

https://invisibledisabilities.org/

http://thepillowfort.co.uk/PFC/

https://www.beyondblue.org.au/

 

I’d love to hear from you if you have an invisible illness – I’m hoping to one day write a book, and your input would be invaluable.

You can email me at music_is_my_language@live.com.au – or if you’d prefer to remain anonymous, you can fill out this survey.